Time is precious. Many of us take it for granted, but for one family that’s not an option. A benefit dance is being held this weekend for one girl a province away.
Hannah Brown is a cancer survivor. She was recently diagnosed with a fatal and extremely rare neurodegenerative disease. It’s called Niemann-Pick type C. Only about 500 people in the world have it.
“Niemann Pick type C is always fatal; generally by mid-teens. She just celebrated her 14th Birthday,” says Hannah’s Grandmother and Prince George resident, Sandra Aalten. “So in the last year since she got the diagnosis we have watched her go from just being a very clumsy girl, to needing leg braces, to the walker, to now if she is going for any distance she is in the wheelchair.”
An 80s dance party is being held at Heartbreakers at 9 p.m. this Saturday. All proceeds will go towards the “Hope for Hannah” campaign.
“There is going to be live music as well as a DJ so we will sort of capture all aspects of the best 80s music out there. There’s going to be costume contests. There’s no pressure to dress up, but there’s going to be some pretty great prizes,” says Co-organizer, Micah Green. “As time goes on, her condition will only worsen. So we are trying to help them a little bit in making their house [in Edmonton] wheelchair accessible and giving her a little bit of a better quality of life.”
So far, 300 tickets have sold. Tickets are $20 and are still available Grama’s Kitchen and Extreme Kids in the Mall. A GoFundMe page has also been set up.